Extubated

YEA!!!!!!

Post-op

William is doing amazing.He is off the ventilator and doing good.He still has the pacemaker on if turn it off his heart rate drops.

They started his blood thinners today its a shot Im hoping he does not go home on that.

Friends and family have been coming by to see Will and very glad for that support.

Thanks to my Mom dad and sis for taking care of my boys at home.

Surgery Day

On his way to surgery

William is in surgery since 730am I cant type Im shaking

1ST BIRTHDAY

Happy Birthday William

Rough Night

William was getting worse all day,low sats,high heart rate.He was having diffuculty breathing.The docs almost put him on the ventilator.He was put on precedex a sedative like to help him calm down.

Heart Cath

Will is scheduled for Fri to have a heart cath done.He is very sick right now.All he does is sleep and cry he is worn out from breathing.I am a wreck right now. I am scared to hear the results tommorow. They are going in to measure the pressure in his heart.The results will then tell if he needs surgery to put in a artificial valve or if its his VSD.We will know alot more then

Back in the PCTICU

Will had been home for 5 days.He was having "episodes"low sats low heart rate since Sat. on Mon. they got worse he was unresponsive it was really scary.I paged Beth our NP immediatley said take him directly to ICU.He is on Hi flow oxygen 7liters when he is usually on 1/4liter.I talked to Beth today the plan is to do a Cardio Cath next week and go from their.