Miss you!

Miss you sweet baby William.You are my sunshine ...It will be 1 year since you left this earth to be in heaven.I love you angel

William is critical but stable.Hes on sedatives to keep him comfortable.He is going infor heart cath and lung biopsy this week to see if he has the deadly pulmonary hypertension or to see if their is anything else we can do for him.
I cant loose my baby boy

William is not good.He is in distress.He is on 10 liters of o2 hi flow and nitric,the docs dont want to put him on ventilator cause they dont think he will come off of it.
Cardioligist wanted to perform a lung biopsy to see if he has the deadly disease in his pulmanory hypertension.The pulmonoligist does not want him under sedation thinks he is very critical.William also as pnemonia and 102 fever.He needs lots of prayers.

William had been home for a month when he got admitted again.He was sick 3 weeks out of the four.He has a new pulmonoligist.the drs put him on a new med he will go in fot a heart cath next week.

William has recoverd very well from surgery,he is a little cranky but I dont blame him.His incision in his head is healing nice.

Will is off Cpap today and doing very well.He woke up and smiled

CPAP

William is on Cpap.He was having difficulty breathing his blood gas was elevated,the cpap is really helping him.The blood cultures came back positve again so he is on vanco antibiotic.
Hes on very good sedation meds to keep him comfortable the docs also said his kidney is in his pelvis whatever that means